Posts tagged with: small steps

‘Twas the night before discharge

All I can think about on this most auspicious of nights, is “here we go again.” After a little more than a month in the hospital I’m about to be... Read More

So now I know what floppy feels like

And it’s good to know. I mean, I was haunted by the idea that I’d find out what it felt like for my baclofen pump settings to be too high... Read More

The fine art of not panicking

There are sayings out there that get tossed around in the MS/chronic illness community that are intended to help folks with MS have perspective on the unique nature of this... Read More

The Un-Sayable Words We Say

If you’ve been with me on this journey for a little while, you probably know that I rarely hold anything back. For better or worse, these pages have been my... Read More

Healing in the time of Corona

It’s a complicated time for all of us, or so every commercial I see on television tells me. Nobody really knows what day it is half the time and the... Read More

Random thoughts from the living room floor

It’s not a bad thing this time, this whole being on the floor thing. See, I had something called a “co-session” of therapy this afternoon where my PT and OT... Read More

This video thing…

It’s weird. I agree. But it’s what I can do right now so…enjoy Bethy Bright and Dark the Movie, part II. Also enjoy the wicked strange faces I pulled for... Read More

Lucky number 4

Here’s the thing. I know the number 4 isn’t particularly lucky and I also know that usually one lucky number is followed by a not-so-lucky number and I’m already mentally... Read More

This time of my confinement

I’m officially 31 sleeps away from my very special Valentine’s Day date night with Dr. Nestor the Long-Eared neurosurgeon and the pieces are starting to come together. I’ve gotten my... Read More

Counting my chickens

I realized today that I’d not updated the blog with my latest news coming out of my test dose of intrathecal baclofen to determine my suitability for the baclofen pump.... Read More