Posts tagged with: spoonie

Happy birthday to me

The bar for having a happy birthday this year is decidedly low, what with the fact that I spent last year’s birthday doing my first stint at inpatient rehab after... Read More

I’m OK…No, really. I am

So very many things have gotten in the way of me writing more regular posts it’s hard to decide where to start with listing them, but the change that seems... Read More

Falling Slowly

As I started writing this post (on my damn phone again…grrr), I got the intense urge to go back through my nearly five years of writing this blog to check... Read More

The seduction of looking back

Alternate title:  “Why I didn’t write an inspirational goodbye to 2020,” by Bethy Bright and Dark. It felt too long? Not punchy enough? Too literal maybe? You know I’ve given... Read More

The ups and downs of a privileged life with chronic illness

According to many reliable sources, i.e. mostly rando blogs on the internet, the five most stressful life events are the following: Death of a loved one Divorce Moving Major illness... Read More

Everything old is new again

More like everything old is old again, if I’m honest. I’m back at the beginning. A very fine place to start, or so said Fraulein Maria, but I’m almost certain... Read More

Darkness falls

When it all gets to be too much, I tend to go quiet. This is a repeating fact that I cannot deny. There was a time when busting out a... Read More

On being a functional ambulator

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More

How About Some MS Merit Badges

It’s odd to me how easy it is to forget what it feels like to be home again after a long hospital stay. I mean, I’ve been home now for... Read More

The first warm days of summer

The forecast said it was going to be warm today and it was. The central air was welcome and set conservatively at 70, you hope that will be enough for... Read More