Posts tagged with: spoonie

My expensive Internet slippers tried to kill me

It’s been a good long time since I took a good tumble. I haven’t bragged about it much. Especially whilst suffering from the dizzies and woozies during this last relapse... Read More

Keep Passing the Open Windows

That’s the best advice I have, after beginning to come out of my very first significant relapse since my MS diagnosis nearly two years ago. Keep passing the open windows.... Read More

The Darkest Places (So Far)

In other words, when you get a diagnosis of multiple sclerosis that you weren’t expecting late-ish in life and let those words sink in, you understand viscerally that this is... Read More

Technical difficulty: LOW (or is it?)

So I thought today was a simple day. I had meetings all morning that were best done on the phone from home (whew). Then I happily noticed that it is... Read More

I cut my hair (and I didn’t post a pic)

This might seem like no big deal to you. If you know me, you’re probably thinking, “Well thank god because who gives crap about your hair? You’re way too obsessed... Read More

Relapse: the Post Script

  The thing is it doesn’t really matter how fed up I am. When you go through something like this last relapse, you tell yourself that it’s a minor set... Read More

The tortoise and the hare (guess which one I am)…

I’m working on adjusting my expectations but I have to be honest, it’s harder than I want it to be. Listen. I’ve never been the hare. Even at my best,... Read More

Don’t call it a comeback

I got cocky again. I know. Shocker but hear me out. I had a decent day yesterday. I got through the whole 8 or so hours of my work day... Read More

Tales from the puffy village

That’s it up there. The puffy village. The place I love most in the world, where I come for comfort, where I lay my head when the world out there... Read More

Life on the inside, ep. 1

So for those just catching up, I took a bit of a turn for the worst earlier this week. I woke up on Thursday to some significant vertigo that was... Read More