Posts tagged with: the MS waiting game

Learning to live with discomfort

In my dreams I can walk. I’m going to tell you a story about a dream I had recently wherein I could walk.  I have these dreams often. They’re often... Read More

I am

I am squirming inside of this human flesh suit that is so broken. I am stuck inside of my head where I cannot stop obsessing about these strange symptoms and... Read More

More like while I was out

Wow. It’s been a long time. I don’t think I’ve ever not written words for this blog or even just for myself for this long before. I wish I could... Read More

Limbo

I cannot lie, reader, using the particular image I chose from my stock photo service for this post made me chuckle right out loud because as I’m sure you can... Read More

The Chinese Finger Trap

The thing I seem to have forgotten about therapy is how much therapy sucks when you’re just getting started. Suck is normally an impactful enough word for something terribly awful... Read More

Life is a lot (chapter 129)

So I’m writing on my phone again because I’m coming to you live and direct from the West Penn Hospital Inpatient Rehab Unit (aka IPR for us frequent flyers) and... Read More

How About Some MS Merit Badges

It’s odd to me how easy it is to forget what it feels like to be home again after a long hospital stay. I mean, I’ve been home now for... Read More

This is my brain on MS

I’ve been avoiding you. To be more accurate, I’ve been avoiding me too. I’ve been trying to pretend I’m OK and hoping that it will eventually stick and them I’d... Read More

‘Twas the night before discharge

All I can think about on this most auspicious of nights, is “here we go again.” After a little more than a month in the hospital I’m about to be... Read More

Welcome to crazy town

The absurdity of my current situation here in inpatient rehab is difficult to overstate. I am in dire need of an epidural steroid injection to see if we can get... Read More