Posts tagged with: the MS waiting game

It’s been awhile since our last ENC outrage

I was probably due. For those unfamiliar, ENC refers to Evil Nurse Carol, she being the RN who is the right hand woman of my MS specialist we all know... Read More

When your switch won’t flip

It’s still off. My switch. It hasn’t gone back on. It’s a real conundrum. First they tell me, rest! Your body is healing, silly person, you’ve just put your body... Read More

The unexpected upside of Lemtrada

Before anyone gets too excited, I use that image above ironically at best. I mean, I’m not laying in bed moaning or weeping but I’m also not out skipping in... Read More

The subtle art of not panicking

When I decided to go for this new approach to my treatment, I made some promises to myself. Maybe they were more like challenges that I presented to myself than... Read More

And then she slept

I’ve been meaning to update the blog with my post-Lemtrada experience sooner than this but here’s the thing: I’ve been asleep. If you’re a regular reader of this blog you... Read More

Musions on Infusions: 40% Down

I When I started this Lemtrada journey on Monday I had every intention of doing a daily blog describing the day-by-day experiences of the treatment. After my first day I... Read More

It finally happened

This whole thing was bound to catch up to me. Eventually. I knew the day would come when I’d be forced to face the fact that this disease I’m still... Read More

I thought you should know…I’ve been here before

It’s not technically another two-month flush, but it feels like it is. I went back into my own archives to remember what I’d written during the actual two-month flush between... Read More

The in-between times are the hardest: episode 3? 4?

The labs have been drawn. So many vials of blood! The urine has been tested. The body has been checked for suspicious moles (all clear) and the pap smear has... Read More

Another beginning

When a new chapter begins in someone’s MS treatment, suddenly it’s not hard to come up with blog content anymore. Suddenly one’s life is full of things to think about,... Read More