Posts tagged with: working with MS

I’m OK…No, really. I am

So very many things have gotten in the way of me writing more regular posts it’s hard to decide where to start with listing them, but the change that seems... Read More

Falling Slowly

As I started writing this post (on my damn phone again…grrr), I got the intense urge to go back through my nearly five years of writing this blog to check... Read More

Darkness falls

When it all gets to be too much, I tend to go quiet. This is a repeating fact that I cannot deny. There was a time when busting out a... Read More

On being a functional ambulator

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More

This is my brain on MS

I’ve been avoiding you. To be more accurate, I’ve been avoiding me too. I’ve been trying to pretend I’m OK and hoping that it will eventually stick and them I’d... Read More

So now I know what floppy feels like

And it’s good to know. I mean, I was haunted by the idea that I’d find out what it felt like for my baclofen pump settings to be too high... Read More

Healing in the time of Corona

It’s a complicated time for all of us, or so every commercial I see on television tells me. Nobody really knows what day it is half the time and the... Read More

Random thoughts from the living room floor

It’s not a bad thing this time, this whole being on the floor thing. See, I had something called a “co-session” of therapy this afternoon where my PT and OT... Read More

Bethy Bright and Dark 2.0

Here’s the thing about putting all your business on the Internet (as my mother calls what I do)…it means when bad things happen you feel compelled to share the news... Read More

It’s been awhile since our last ENC outrage

I was probably due. For those unfamiliar, ENC refers to Evil Nurse Carol, she being the RN who is the right hand woman of my MS specialist we all know... Read More