Posts tagged with: working with MS

working with MS

A very bright and dark Christmas

I’m sure it will come as no surprise to any of my readers that I was not looking forward to the Christmas holidays this year. I mean, I’m not terribly... Read More

Been there, done that (and I’m so grateful)

Here’s the thing. We call multiple sclerosis a snowflake disease and with good reason. MS is never the same for any two people. Things that are major issues for me,... Read More

The blog post that almost wasn’t

By now, if you’ve read anything of this blog you know that I am a daily writer. I’ve written in a journal for over 20 years. I have stacks and... Read More

When words fail the writer

We all get there eventually, I guess. We all get to the point where you are just so blind with anger and frustration that you don’t even have words to... Read More

Keep Passing the Open Windows

That’s the best advice I have, after beginning to come out of my very first significant relapse since my MS diagnosis nearly two years ago. Keep passing the open windows.... Read More

This is a happy post about fear

Sounds like an oxymoron, I realize, to write a happy post about fear. That’s why I’m starting with the good news. I survived! Yet, as I continue to slog my... Read More

Technical difficulty: LOW (or is it?)

So I thought today was a simple day. I had meetings all morning that were best done on the phone from home (whew). Then I happily noticed that it is... Read More

Relapse: the Post Script

  The thing is it doesn’t really matter how fed up I am. When you go through something like this last relapse, you tell yourself that it’s a minor set... Read More

The spaces in between might be the hardest

Nah. That’s probably somewhat of an overstatement but it keeps occurring to me, in the last week or so, as I wait and rest and do everything I am told... Read More

The tortoise and the hare (guess which one I am)…

I’m working on adjusting my expectations but I have to be honest, it’s harder than I want it to be. Listen. I’ve never been the hare. Even at my best,... Read More