Posts tagged with: working with MS

Relationship status: It’s Complicated

Of course, I’m talking about my relationship with the Sun. What the hell were you thinking? Anyway. My complicated relationship with the Sun didn’t just begin with my MS diagnosis.... Read More

Broken eyes, broken brains and the things we don’t talk about

It’s Sunday and I find myself muddled. Again. I think it’s the weekends where I find myself with lots of time to do nothing, that I struggle. Sometimes it’s not... Read More

In the category of “always learning the hard way…”

I offer this quick update. As evidenced by my schlumping, stomping, dragging, bobbing and weaving all over downtown Pittsburgh today, I can confirm that it is not actually a good... Read More

The game of life

I’ve been dying to write. Ideas have been popping into my head left and right, topics for discussion, news related to my MS, my life…life in general! Here’s the thing.... Read More

Sometimes it gets very real up in here

I have been telling myself to stay in the moment and not think too far ahead so constantly that it’s almost funny how much work it is, this whole staying... Read More

All drugs are not created equal

Color me informed. Many of you know that I’ve recently started taking Provigil (modafinil) for my MS-related fatigue. The drug isn’t technically approved for this use. It is technically approved... Read More

Work…is so much work

It’s been a really shitty couple of days with these legs. They just don’t want to work. They’re so heavy. And shaky. All at the same time. I’m trying to... Read More