Twas the night before infusion #2

Tomorrow, merely one sleep away, is my second full dose of the new goo (Ocrevus for new readers). I feel like a kid before the first day of school. My... Read More

My expensive Internet slippers tried to kill me

It’s been a good long time since I took a good tumble. I haven’t bragged about it much. Especially whilst suffering from the dizzies and woozies during this last relapse... Read More

When words fail the writer

We all get there eventually, I guess. We all get to the point where you are just so blind with anger and frustration that you don’t even have words to... Read More

Keep Passing the Open Windows

That’s the best advice I have, after beginning to come out of my very first significant relapse since my MS diagnosis nearly two years ago. Keep passing the open windows.... Read More

This is a happy post about fear

Sounds like an oxymoron, I realize, to write a happy post about fear. That’s why I’m starting with the good news. I survived! Yet, as I continue to slog my... Read More

The Darkest Places (So Far)

In other words, when you get a diagnosis of multiple sclerosis that you weren’t expecting late-ish in life and let those words sink in, you understand viscerally that this is... Read More

Technical difficulty: LOW (or is it?)

So I thought today was a simple day. I had meetings all morning that were best done on the phone from home (whew). Then I happily noticed that it is... Read More

I cut my hair (and I didn’t post a pic)

This might seem like no big deal to you. If you know me, you’re probably thinking, “Well thank god because who gives crap about your hair? You’re way too obsessed... Read More

Relapse: the Post Script

  The thing is it doesn’t really matter how fed up I am. When you go through something like this last relapse, you tell yourself that it’s a minor set... Read More

The spaces in between might be the hardest

Nah. That’s probably somewhat of an overstatement but it keeps occurring to me, in the last week or so, as I wait and rest and do everything I am told... Read More