Posts tagged with: life with MS

Fill ‘er up

It’s infusion day eve. The image above gives a fairly accurate representation of what it feels like the day before I head to Allegheny General Hospital for my monthly fill... Read More

The game of life

I’ve been dying to write. Ideas have been popping into my head left and right, topics for discussion, news related to my MS, my life…life in general! Here’s the thing.... Read More

The new Mr. Costanza

Mr. Constanza lived on my street since the day I moved in, about three houses up on the same side of the street. He and his wife, Mrs. Constanza, were... Read More

To wait for help or not wait for help

That is the question. I don’t like that I’ve become a person who requires so much help. I struggle with it, the idea that I am no longer the independent... Read More

Having myself a merry little MS-mas

I have always loved the holidays. I know. It’s lame. I have a family that I mostly like. (I used to say “I have a perfect family” but I’m thinking... Read More

You know you have MS when…

I’m enjoying the crap out of my holiday time off, guys. I mean, not one damn thing has changed. I’m still wondering if Provigil is actually working. I still can’t... Read More

Is drunk therapy a thing?

Today is a most special day. It’s my first ever double-long therapy session with my precious (aka Cheryl). I asked her at my last session if we could plan a... Read More

Changing your mind is hard

I think I wrote on this very blog not that very long ago about my need to change my thinking. I was having one of those rare quasi-positive days when... Read More

When did I become such a creature of habit?

Off schedule infusion day throws me. The routine is different. I didn’t get my post-infusion egg souffle from Panera and that just feels wrong. I can’t take my customary post-infusion... Read More

The funny thing about loneliness

I love being alone. This seems very odd to many people, but I’ve established a sense of comfort in the solitude that I’ve been given. I treasure it. I hardly... Read More