Posts tagged with: life with MS

The ups and downs of a privileged life with chronic illness

According to many reliable sources, i.e. mostly rando blogs on the internet, the five most stressful life events are the following: Death of a loved one Divorce Moving Major illness... Read More

‘Twas the night before discharge

And all through my brain, were thoughts most unwelcome that may drive me insane. I in my pajamas worn for 27 days my aide in her scrubs, packed up my... Read More

Everything old is new again

More like everything old is old again, if I’m honest. I’m back at the beginning. A very fine place to start, or so said Fraulein Maria, but I’m almost certain... Read More

Life is a lot (chapter 129)

So I’m writing on my phone again because I’m coming to you live and direct from the West Penn Hospital Inpatient Rehab Unit (aka IPR for us frequent flyers) and... Read More

What a strange night

I’ve been putting off writing this post for a while now. And now that I’m finally writing it, and on my phone of all things, I’m not sure how eloquent... Read More

On being a functional ambulator

I’m sitting here looking at friends’ pictures on Instagram of their super fun long holiday weekend plans, thinking about my family who have gathered at my niece’s new house for... Read More

How About Some MS Merit Badges

It’s odd to me how easy it is to forget what it feels like to be home again after a long hospital stay. I mean, I’ve been home now for... Read More

‘Twas the night before discharge

All I can think about on this most auspicious of nights, is “here we go again.” After a little more than a month in the hospital I’m about to be... Read More

Yet another Saturday in the joint

There’s a potential discharge date on the horizon and I wish I could adequately explain the degree of anxiety it has created in me. It’s what I’ve wished for since... Read More

So now I know what floppy feels like

And it’s good to know. I mean, I was haunted by the idea that I’d find out what it felt like for my baclofen pump settings to be too high... Read More