Posts tagged with: MS

Changing your mind is hard

I think I wrote on this very blog not that very long ago about my need to change my thinking. I was having one of those rare quasi-positive days when... Read More

When did I become such a creature of habit?

Off schedule infusion day throws me. The routine is different. I didn’t get my post-infusion egg souffle from Panera and that just feels wrong. I can’t take my customary post-infusion... Read More

The funny thing about loneliness

I love being alone. This seems very odd to many people, but I’ve established a sense of comfort in the solitude that I’ve been given. I treasure it. I hardly... Read More

People are really…nice sometimes

You already know this has been a tough week. I’ve been struggling openly with a myriad of annoying symptoms that are seriously getting me down. Mostly, my walking has been... Read More

Hi, Rock Bottom? I’ve been waiting to meet you

Cheryl agreed with me yesterday. This is worse than when Chuck died. It seems almost ludicrous to say that but this is actually, really a lot worse. I could pretend... Read More

Post-trip spoon collecting has commenced 

Post-trip spoon collecting is in full effect.  I’m working from bed. The kitties are snuggling and not fighting. The sound of their purrs is soothing to me. Clean sheets on... Read More

A funny thing happened on my way to a party

I’m sitting here in my hotel room in Atlanta, Georgia watching a series of old Sandra Bullock holiday rom-coms trying to avoid writing this post mostly because I’m so embarrassed... Read More

That reminds me of something my mother used to say

My mother is frequently mentioned in my writing mainly because she is a font of material and one of my most favorite people in all of the world. When my... Read More

FOMO vs. Acceptance: The Grudge Match

I’m sure it’s not much of a surprise to anyone that I find myself in the grips of full on FOMO quite regularly. I’m in a constant state of evaluation... Read More

My special little snowflake

I had kind of an epiphany since my last infusion. Something clicked in my brain around the time I heard the second medical professional say to me, “That’s just your... Read More