Posts tagged with: MS

My so-called perfectly curated Internet life

I’ve always been somewhat of a loner. Sometimes when I say that in front of people, they are aghast. Not you, Bethie! You’re not a loner. But it’s totally true.... Read More

MS might actually HAVE me, after all

Cheryl, my loyal and trusty therapist, announced today in our session that she thinks I’ve officially entered the anger phase of my MS mourning. I laughed out loud. I’ve felt... Read More

Bethydark on a sunny day

I had a rough day today, mentally speaking. Maybe because it was Saturday. And the weather was beautiful. And I had nothing to do and nowhere to be. It kind... Read More

The daily Provigil balancing act

Learning the difference between feeling like I can do things and actually doing them and feeling the after effects is my current situation. Provigil makes me FEEL like I can... Read More

Eff you, Charlotte Airport

Charlotte airport gets strike TWO. I waited for 25 minutes for my wheels, until I gave up and walked. I got as far as the “assistance hub” where I saw... Read More

My personal chemistry experiment

My life has become a chemistry experiment. I mean, on one hand, I guess that’s better than my life being a never ending loop of sleeping, working, trying to watch... Read More

Adventures with Provigil

I took my first dose of Provigil today. I’m not sure I loved it. I felt kind of tingly and buzzy all day. Of course, I sort of forgot to... Read More

A visit with the Great Scott

Well, the much awaited meeting with The Great Scott (this is my pet name for my neurologist, Dr. Scott) was slightly more helpful than I expected. It does throw me... Read More

Work…is so much work

It’s been a really shitty couple of days with these legs. They just don’t want to work. They’re so heavy. And shaky. All at the same time. I’m trying to... Read More

Is this all I have to talk about now?

It’s Sunday. I didn’t sleep until 1PM today. I am celebrating the break in the weather by trying different things – like getting out of bed early and going to... Read More