Posts tagged with: Progressive MS

Learning to live with discomfort

In my dreams I can walk. I’m going to tell you a story about a dream I had recently wherein I could walk.  I have these dreams often. They’re often... Read More

Nighttime: An Ode

Nighttime is alive with sound here at the Hidden Falls Home for Wayward Women. Nighttime is the sound of a million unseen creatures coming in through my open windows. I... Read More

Everything old is new again

More like everything old is old again, if I’m honest. I’m back at the beginning. A very fine place to start, or so said Fraulein Maria, but I’m almost certain... Read More

So now I know what floppy feels like

And it’s good to know. I mean, I was haunted by the idea that I’d find out what it felt like for my baclofen pump settings to be too high... Read More

Where’s Bethy

Hey friends. This is just a quick note to let folks know that I am back in the hospital for a while and am having difficulty writing (typing really) on... Read More

The first warm days of summer

The forecast said it was going to be warm today and it was. The central air was welcome and set conservatively at 70, you hope that will be enough for... Read More

Random thoughts from the living room floor

It’s not a bad thing this time, this whole being on the floor thing. See, I had something called a “co-session” of therapy this afternoon where my PT and OT... Read More

Is this thing on?

I’ve been struggling, friends, on so many levels that I’m almost not sure where to begin with this post. The struggle is multi-layered, of course, because you wouldn’t expect an... Read More

The seesaw of that MS life

I have to be honest. I’ve been having trouble writing, this is a full-on truth that I cannot deny but while some of my challenge is definitely mental, a good... Read More

Bethy Bright and Dark 2.0

Here’s the thing about putting all your business on the Internet (as my mother calls what I do)…it means when bad things happen you feel compelled to share the news... Read More