Posts tagged with: spoonie

Tales from the puffy village

That’s it up there. The puffy village. The place I love most in the world, where I come for comfort, where I lay my head when the world out there... Read More

Life on the inside, ep. 1

So for those just catching up, I took a bit of a turn for the worst earlier this week. I woke up on Thursday to some significant vertigo that was... Read More

Life is made up of a whole lot of steps

Think about the average day. From the time you put your feet on the floor beside your bed in the morning to the time you lift them off that same... Read More

The most important rule of MS Club

I almost hesitate to say this out loud (or in writing, which is the same thing, really, maybe even worse)…but I’ve been feeling a little better these last few days.... Read More

Another day…another missive from The Great Scott

Last time, on bethybrightanddark.com, we found our heroine in some distress. After a two month flush without meds, and the long awaited first dose of the new goo (aka Ocrevus),... Read More

The party was awesome (the party was horrible)

All of the work to get to the big day was worth it. Our new office Open House was a great success. All of that pre-party angst was over and... Read More

Relapse: Part Deaux

He called me. He actually called me himself. He didn’t sic Evil Nurse Carol on me, The Great Scott all powerful and good called me back his very own self.... Read More

Maybe I have unrealistic expectations

It always comes down to this. The most basic things are my undoing. But when I thought about it more, I am starting to realize something that is probably painfully... Read More

The problem with “and”

This basic thought has been bothering me all week but it’s such a fundamental “a-ha” moment for me, I feel compelled to record my discovery. It’s so simple it’s kind... Read More

Relationship status: It’s Complicated

Of course, I’m talking about my relationship with the Sun. What the hell were you thinking? Anyway. My complicated relationship with the Sun didn’t just begin with my MS diagnosis.... Read More